Saturday, June 2, 2012
Who can not love this face. It has been fun to see him developing his personality.
We went to the park and got our first snow cones of the season! The kids loved them. McCall got a cheesecake flavored one. I've never tried one of those but it definitely tasted like cheesecake!!
So here's another update on McCall for those who are wanting to know. We had a visit with the doctor at Primary Children's this week and he showed us pictures from her MRI done in April. Hopefully you can see/understand my picture. I have her 2 lungs and heart and then the yellow space is the lymphatic malformations. She has one VERY large mass and then some smaller ones around it. The largest one measures at 46.4mm. (YIKES) To give you an idea of how large that is (the doctors fist is 6cm) this one is about the size of a lemon. The smaller ones I'm guesstimating are maybe the size of cherry tomatoes. We are waiting to get preauthorization from insurance before they do surgery. So hopefully it will get taken care of this june. Then she will have to go for an ultrasound and most likely another surgery in 5-6 months. The doctor thinks he will most likely have to poke her at least twice for them to go away. Basically fluid is extracted from the mass with a large needle and then medicine is injected into them to help them to shrink and eventually go away! Let's hope the doctor has good aim so he doesn't poke any organs he's not supposed to. We really think we got the job where we are so that we would eventually meet up with this particular doctor. We've been passed around to several people but this guy works quite a bit with these malformations but has only been at this hospital a little over a year. He said only him and 2 other doctors in this region can do this surgery. The next closest doctor is in Denver and that doctor is $25 grand more expensive.
So these malformations came about because when she was in the uterus something didn't connect right and because of that these started to grow. McCall has been a trooper but we have wondered how much of the conversations she understands/hears things like needles and doctors. She has started having bathroom trouble despite being potty trained and she cries out when she is sleeping, like she's scared or something. I don't know if it's related to what's going on but maybe. I would just really like to get all this taken care of quickly and not have it looming over my head to worry about! Here's to hoping all goes well and she will only have to be poked for one surgery!
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2 comments:
Wow - this is not a fun thing for a little one, or her parents! We'll certainly keep her in our prayers that all goes well and gets resolved quickly.
poor little McCall. She is too sweet. Glad you found a good Doc, hope it all can be worked out quickly!
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